Associate Director, Neuromuscular, US Patient Advocacy

Key Responsibilities

• Build and maintain trusted and strategic long-term relationships with patient organizations and communities in relevant Neuromuscular disease areas (including but not limited to DMD, DM-1, FSHD), centered on two-way communications and collaborations to advance shared priorities
• Identify the right patient organizations to drive strategic collaborations and partnerships that help educate and mobilize patients to seek optimal care and elevate the voice of the patient to inform decisionmakers in the patient treatment journey, including HCPs, policymakers and payers
• Execute integrated patient advocacy strategies aligned to critical business and corporate priorities based on deep understanding of the patient/care partner experience and unmet needs
• Ensure patient/care partner insights and implications for launch and growth brands are systematically actioned across corporate affairs and with cross-functional partners
• Stay abreast of key environmental and policy issues impacting the company’s ability to operate and pre-emptively drive initiatives and build relationships to shape the environment
• Develop AI-enabled educational programs and resources that address unmet patient and caregiver needs and drive business objectives
• Monitor and evaluate performance to achieve and maintain best-in-class outcomes, while being fully compliant
• Effectively manage budget and maximize agency ROI

Essential Requirements

• Bachelor’s degree required
• 8+ years of experience in patient advocacy or related discipline with a healthcare and/or pharmaceutical background, prior experience in neuromuscular and rare disease areas preferred
• 1-2 years industry patient advocacy role required
• Demonstrated ability to build trusting relationships with patient organizations, professional associations and other stakeholders
• Commercial launch experience
• Development and implementation of integrated plans and projects against business objectives and priorities
• Influencing and navigating complexity
• Management of agency partners and budget
• Crisis and issues management

Desirable Requirements

• Understanding of US policy, regulatory and compliance landscape
• Excellent written and verbal communication skills
• Excellent people & communication skills
• Ability to influence across diverse set of matrix cross-functional partners
• Business acumen, critical thinking and collaborative enterprise mindset
• Ability to multi-task and manage complex issues
• Ability to operate within a dynamic & ambiguous environment while maintaining integrity