Community Advocacy Specialist

Position Summary

The Specialist, Community Advocacy builds and sustains trusted relationships with patients, families, caregivers, patient advocacy organizations, and other community stakeholders while supporting the delivery of meaningful community programs. Initially focused on rare kidney disease, the role combines external engagement, field insight gathering, and program coordination to help inform Travere's patient engagement strategy and educational priorities.

Primary Responsibilities

Community Relationships and Field Engagement

• Cultivate and steward assigned relationships with patient advocacy organizations, community-based organizations, patients, families, caregivers, and other community stakeholders; serve as a day-to-day contact and follow through on agreed actions.
• Identify opportunities to broaden engagement with local organizations and expand reach to less-connected populations.
• Represent Travere at patient meetings, educational programs, conferences, and community events; engage stakeholders with empathy, cultural humility, and respect for their priorities and independence.
• Interact professionally with healthcare professionals and community leaders to understand local needs and support approved community education and engagement activities.
• Use independent judgment to prioritize routine outreach, respond to partner needs, and recommend next steps; escalate sensitive matters, new commitments, or issues requiring strategic, medical, or compliance guidance.

Community Insights and External Landscape

• Gather insights through field interactions and approved listening activities, including patient and caregiver experiences, educational gaps, barriers to engagement, and unmet community needs.
• Document and synthesize observations into concise summaries, and recommend opportunities to inform patient engagement strategy, educational priorities, and future programs.
• Share insights with Community Advocacy leadership and relevant Patient Advocacy colleagues; support appropriate follow-up so community perspectives inform planning and program improvements.
• Maintain working knowledge of the rare kidney disease advocacy landscape, emerging scientific advancements, and evolving patient education needs through approved resources and internal learning.

Community Programs and RKD and Me

• Coordinate assigned local and virtual programs, listening sessions, educational events, and grassroots activities from planning through follow-up, with accountability for timelines and assigned deliverables.
• Support RKD and Me programming and patient and caregiver ambassador activities, including participant engagement, onboarding coordination, scheduling, communications, and approved storytelling activities.
• Coordinate venues, invitations, registration, vendors, travel, accessibility, materials, and on-site needs; resolve routine execution issues and elevate material risks with proposed solutions.
• Gather participant feedback and assess attendance, reach, participant experience, and lessons learned to recommend practical program improvements.

Operational Accountability and Collaboration

• Maintain accurate relationship records, engagement histories, commitments, project plans, budgets, expenses, and program metrics; manage assigned work with limited day-to-day supervision.
• Prepare meeting briefs, presentations, outreach communications, and program summaries; coordinate required internal reviews and use approved materials.
• Collaborate with therapeutic advocacy leads, Rare Kidney Educators, Corporate Communications, Patient Marketing, Medical Affairs, and other colleagues as appropriate to assigned initiatives and established functional boundaries.
• Operate within approved budgets, plans, and decision authority; protect patient privacy, follow applicable policies, and preserve the independence of patient organizations.
• Route requests outside Community Advocacy priorities to the Director for alignment.

Education and Experience

• Bachelor's degree in public health, communications, healthcare, nonprofit management, or a related discipline, or an equivalent combination of education and relevant experience.
• At least four years of experience in patient advocacy, including community engagement, patient or caregiver programs, or external stakeholder relationships.
• Demonstrated experience cultivating relationships with patients, caregivers, advocacy organizations, or community partners and independently managing assigned projects or programs.
• Working knowledge of the external rare kidney disease landscape, including patient organizations, community needs, and relevant scientific and treatment advancements.
• Experience interacting with healthcare professionals and communicating effectively with varied external audiences.
• Experience with public speaking, presentations, or group facilitation, with the ability to communicate clearly and adapt to audience needs.

Preferred Qualifications

• Experience in rare kidney disease or another rare disease community, particularly in a pharmaceutical, biotechnology, healthcare, or nonprofit setting.
• Experience with ambassador programs, community education, grassroots outreach, or culturally responsive engagement.
• Bilingual proficiency, including Spanish, is a plus.

Knowledge Skills and Competencies

• Sound independent judgment, initiative, and accountability, including recognition of when to seek guidance or escalate an issue.
• Strong listening, relationship-building, written communication, and public speaking skills; empathy and discretion when engaging patients and families.
• Ability to translate community observations into clear insights and practical recommendations while respecting the limits of available information.
• Strong organization, project coordination, attention to detail, and proficiency with Microsoft Office and relationship or project tracking systems.
• Ability to understand and accurately communicate approved disease education within role boundaries; familiarity with privacy, compliance, and ethical principles affecting patient advocacy.

Travel Requirements

Ability to travel up to approximately 50 percent domestically for community events, patient programs, conferences, and internal meetings, including occasional evening and weekend commitments.