Director, Patient Advocacy

Key Responsibilities

Patient Advocacy Strategy & Program Leadership

• Develop and execute a multi-year patient advocacy strategy aligned to corporate objectives, pipeline and launch milestones, and therapeutic area priorities in allergy and immunology.
• Evolve the existing program: assess current partnerships, activities, and outcomes, and prioritize where to deepen and expand efforts.
• Establish a clear framework and metrics for measuring the impact of advocacy activity, and report progress to the VP, Corporate Affairs and executive leadership.
• Serve as the internal voice of the patient community, translating patient insights into input for medical, clinical, and commercial teams in a compliant manner.

Patient Organization & Coalition Engagement

• Build and maintain trusted, long-term relationships with patient advocacy organizations, coalitions, and medical societies, including leaders in allergy and immunology.
• Maintain stakeholder mapping, engagement plans, and outreach tracking to ensure consistent, measurable relationship management.
• Represent the company at patient community events, conferences, and advisory forums, and prepare executives for external patient engagements.
• Identify emerging and underserved patient communities and recommend where the company should invest as the pipeline grows.

Grassroots & Regional Capability Build-Out

• Design and build a scalable grassroots advocacy infrastructure, including advocate recruitment, training, and engagement pathways, that grows with the company.
• Develop a regional advocacy model, including regional partnerships and state and local patient networks, in coordination with the Vice President, Global Corporate Affairs, Senior Director, U.S. Policy & Government Affairs and state policy advisors.
• Evaluate and deploy advocacy platforms and tools for advocate management, outreach, and reporting.
• Plan and execute advocacy programs such as Hill days and fly-ins, policy forums, advocacy summits, and conference activations with external partners and internal teams.
• Define the staffing, vendor, and budget plan needed to scale the program, and build the team over time.

Compliance & Governance

• Build and manage the Patient Advisory Board (PAB) to ensure the patient voice is integrated into DBV's business initiatives.
• Own the compliance framework for patient advocacy, ensuring all activity adheres to applicable laws, industry codes, and company policy, including the Anti-Kickback Statute, OIG guidance, the PhRMA Code on Interactions with Health Care Professionals, the Physician Payments Sunshine Act (Open Payments), FDA promotional requirements, and applicable state laws.
• Maintain firm separation between advocacy activity and commercial, sales, and promotional functions, and ensure patient organization funding decisions are made on objective, documented criteria.
• Partner with Legal and Compliance on written agreements, funding disclosures, transparency reporting, speaker and advisor engagements, and training for internal teams.
• Maintain audit-ready documentation, internal controls, and timely escalation of potential compliance issues.

Sponsorships, Grants & Budget Management

• Own the annual corporate patient advocacy sponsorship and support calendar: identify strategic opportunities, coordinate internal reviews, manage approvals, and track deliverables.
• Oversee sponsorship agreements, statements of work, and related contracts in partnership with Legal, Compliance, and Finance.
• Own the patient advocacy budget, including forecasting, vendor and agency spend, and post-event reporting, with administrative and purchasing support from Finance or program coordinators.
• Manage external agencies, consultants, and advocacy platform vendors, including scopes of work and performance.

Cross-Functional Partnership

• Partner with Medical Affairs, Clinical Operations, Regulatory Affairs, Market Access, Communications, and other Corporate Affairs functions to align advocacy activity with company strategy and communications.
• Align with the Senior Director, U.S. Policy & Government Affairs on shared priorities, patient testimony, and coordinated stakeholder engagement.
• Provide executive briefings, talking points, and presentations for patient-facing engagements.