Patient Engagement Liaison (Mid-Atlantic/Ohio Valley)

Responsibilities include, but are not limited to:

• Engages with the rare disease community, including patient advocacy organizations, to better understand the rare experience and incorporate those insights throughout PTC.
• Collaborate internally with other PTC teams to help identify, educate, build, and leverage relationships with those living with rare diseases, their caregivers, and Patient Advocacy Organizations.
• If appropriate, assist the community with resources to help remove access barriers to help gain coverage for marketed products.
• Build patient advocacy and community relationships for currently marketed product disease states and those in development, consistent with applicable regulations.
• Works cross functionally with medical, communications, commercial, legal and compliance colleagues to ensure country specific guidelines, standards and regulations are followed.
• Connect families to Patient Advocacy Organizations and resources.
• Develop, plan and execute educational programs for those living with rare diseases and their caregivers.
• Supports Patient Advocacy Organizations through shared interests in education and programs
• Work with the rare disease community to advocate for access to care and therapies

Knowledge/ Skills/ Abilities Required:

• An empathetic and compassionate person that can relate to rare families and their challenges.
• Understanding of healthcare, specialty pharmacy, pharma, and biotech industry.
• Maintenance of all compliance rules and confidentiality.
• Demonstrated leadership working as part of cross functional teams.
• History of building and maintaining strong relationships, internally and externally.
• Proficiency with Microsoft Office suite and zoom.
• Excellent verbal and written communication, as well as presentation skills, including the ability to explain technical information to non-technical audiences.
• Ability to work independently and collaboratively in a fast-paced matrixed team environment consisting of internal and external members.
• An analytical thinker with excellent critical thinking skills and the ability to adapt to changing priorities and deadlines.
• Excellent planning, organization and time management skills.
• Ability to enter data quickly, confidentially and accurately into CRM.

Minimum level of education and years of relevant work experience:

• Bachelor's degree
• 5 years of experience in pharmaceutical, biotechnology, advocacy, medical, or related field.
• Experience supporting people with rare diseases, their caregivers and advocacy organizations.

Special knowledge or skills and/or licenses preferred:

• Degree in a related clinical or scientific discipline including, but not limited to nursing, public health, social work, nutrition, dietetics.

Travel Requirements:

• Up to 75% domestic travel, including overnights, weekends and evening responsibilities as needed. Potential for international travel as needed.
• Valid driver's license and clean driving record.

Physical requirements:

• Field-based position located in the continental US, with easy access to a major airline travel hub. Travel as required: driving, airline, and/or public transportation.
• Ability to travel extensively throughout assigned territory, country and potentially globally.